Jan 6, 2026 · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best …

NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already …

The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made …

NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare …

Discover NORD's mission to drive rare disease research, support patients, and advocate for transformative healthcare policies nationwide.

Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific …

NORD helps those living with rare diseases find patient assistance programs/financial assistance programs and help them get a diagnosis.

The National Organization for Rare Disorders (NORD) is proud to be the official US partner for Rare Disease Day.

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …

Authoritative overview of rare disease prevalence, impact, and critical statistics to raise awareness and understanding.